This repository stores the data dictionary (codebook) describing an ICD-10-CM-based expanded code set that allows accurate phenotypic description of cleft lip and/or palate (CL/P). The expanded codes are collapsible into the official parent ICD-10-CM codes. Where possible, a crosswalk is provided to facilitate conversion of the expanded codes into alternate coding schemes (e.g., CDC-BPA, ICD-9-CM, SNOMED-CT).
Use of this ICD-10 Expansion for CL/P is explained in the following publication:
Allori AC, Cragan JD, Cassell CH, and Marcus JR. An ICD-10-based expanded code set for use in cleft lip/palate research and surveillance. Birth Defects Res Part A. ACCEPTED, PENDING PUBLICATION.
####Licensure:
- To ensure consistency across sites, the code set may be distributed but not modified. Thus, a CC-BY-ND-4.0 license applies. Pull requests will constitute a request for code-set changes that must be reviewed by the Steering Committee before dissemination and implementation across participating sites.
- Application of the expanded code set is allowed according to a CC-BY-SA-4.0 license. Commercial application is permitted, but all derivative works must be freely distributed .
- Any associated software in this repository is distributed according to the MIT License.